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Extraordinary! A Book for Children with Rare Diseases (Mandarin)
Hardcover
ISBN13: 9781736034446
Publisher: Kara Ayik
Published: Mar 3 2022
Pages: 34
Weight: 0.68
Height: 0.25 Width: 7.00 Depth: 10.00
Language: Mandar
是什么让罕见病儿童非同寻常？
聆听罕见病儿童埃夫伦自我成长的心路历程，探索问题答案！
本书由母子联手创作，基于罕见病患者面临的挑战与机遇，就身份、包容与自我认知展开适合孩子的讨论。书中的经验全部是小作者作为超罕见病患者一路长大的亲身经历，旨在为小读者理解个人身份和罕见病对个人身份的正面影响提供指南。家庭成员和护理人员也可以积极参与孩子的探索过程，根据孩子的成长需求制定读书计划。
本书插图由获奖童书插画家伊恩-戴尔绘制。《非同寻常的你！》旨在通过其由衷的文字和敏感又真实的插画鼓舞、激励所有患有罕见病的孩子活出最美好的一生。
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